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The Legacy Project seeks to increase knowledge about HIV clinical prevention and therapeutic research, cure research, scientific literacy, and participation in HIV/AIDS Clinical Research among the most disparately impacted communities in the United States.
The Legacy Project 2016 Work Plan is in line with the 2016 NIH HIV/AIDS Research Priorities and Guidelines for Determining AIDS cross cutting areas of basic research, health disparities and training including: Research to reduce health disparities in the incidence of new HIV infections or in treatment outcomes of those living with HIV/AIDS; Research training of the workforce required to conduct high priority HIV/AIDS or HIV/AIDS related research; and addressing health and social issues that are clearly linked with HIV (transmission/acquisition, pathogenesis, morbidity and mortality, stigma) in the context of HIV (i.e., in populations or settings with high HIV prevalence or incidence), including young black men who have sex with men.
As part of the 2014 Network recompetition, funding for the Legacy Project was significantly reduced which has impacted the scope of Legacy’s work. With funding constraints, the Legacy Project now has to function more efficiently and effectively to communicate and collaborate with networks, sites, partners and the general public. The Legacy Project is still committed to the goals of the Faith Initiative, but faces challenges around the lack of funding. The Legacy Project will work to pursue funding opportunities to continue its valuable work. Legacy’s continued success depends on the support and cooperation of DAIDS and the networks. Legacy will continue to work to coordinate activities and meet the following objectives outlined in the following Legacy 2016 Work Plan.
Legacy Project Objective #1: Facilitate collaborative (community, site and network) involvement throughout the research process among the NIH HIV/AIDS clinical trials networks.
Strategies and activities to support this objective:
Consult/collaborate with all of the NIH HIV/AIDS clinical trials networks, the Women’s HIV Research Collaborative (WHRC), and Community Partners to identify research priorities.
Consult/collaborate with populations at high risk for HIV acquisition and burden, as well as those underrepresented in HIV clinical research (Black and Latino MSM, transgender persons, house/ball communities, Black gay pride attendees, women, etc.), to identify community-level priorities and raise awareness of these priorities among all of the NIH HIV/AIDS clinical trials networks and sites.
Assist WHRC leadership in developing new projects focused on contraception guidelines and the acceptability of PrEP among women.
Promote and support the work of the DAIDS Cross-Network Transgender Working Group to identify and address challenges and issues that impact transgender inclusion in the NIH-funded HIV/AIDS network trials.
Maintain relationships with network communications and community engagement staff in collaboration with Community Partners and the HANC-facilitated Communications Working Group.
Legacy Project Objective #2 Provide information exchange to enhance collaboration and identify additional engagement topics/issues in the field.
Maintain collaborations/partnerships with former Be the Generation (BTG) partners and select CBOs and ASOs across the U.S.
Conduct capacity building and HIV scientific literacy training with Legacy Project collaborators and populations underrepresented in HIV clinical research to increase awareness and knowledge of HIV clinical research and community readiness to engage in trial participation activities.
Conduct capacity building and HIV scientific literacy training with faith initiatives to increase culturally appropriate messengers who value research environments and support clinical trial participation. Activities will be evaluated on their ability to provide opportunities to remove obstacles to spiritually-informed HIV education.
Establish and/or enhance site-level linkages/partnerships with specialized institutions/networks by continuing engagement with Black gay prides (Atlanta, Dallas, and LA) and house/ball communities.
Establish collaborations with the medical schools at historically black colleges and universities (HBCUs) Meharry, Charles Drew, Howard and Morehouse, to help address/eliminate HIV-related disparities and stigma.
Establish formal collaboration with AVAC by inviting AVAC staff member to join Legacy Project Working Group.
Invite Martin Delaney Collaboratory to Legacy call or webinar to present on HIV cure research.\
Develop strategies to establish and/or enhance linkages/partnerships with other Legacy stakeholders.
Develop strategies to provide information/messaging focused on HIV treatment.
Provide support to HPTN and HVTN in educating communities about the Antibody Mediated Prevention (AMP) Study.
Provide support to HPTN and HVTN in educating communities through increasing awareness and understanding of monoclonal antibodies.
Provide support to MTN in educating communities about microbicide research.
Provide suggestions to PACHA regarding how to address HIV-related disparities for young BMSM in the southern U.S. where there are few or no NIH HIV/AIDS clinical research sites.
Legacy Project Objective #3: Share and disseminate information, training materials and resources.
Coordinate dissemination and promotion of the BTG HIV Prevention Research and Basic Scientific Literacy Modules.
Disseminate training materials designed to increase scientific literacy among historically underrepresented communities most impacted by the domestic HIV epidemic.
Host community-focused webinars on HIV prevention, treatment and cure clinical research advances in collaboration with the NIH HIV/AIDS clinical trials networks. \
Provide input/technical assistance in the work of the Faith Initiative for Black HIV/AIDS Awareness Day 2016, The Week of Prayer 2016 and USCA 2016.
Disseminate the guidance document for engaging Native American communities based on the experiences of the Native American Engagement in HIV Clinical Research Project.
Host workshops/presentations at the National Pow Wows, NASEM, APHA, USCA 2016 and other meetings/events aimed at improving community research literacy and support for the NIH HIV/AIDS clinical trials networks.
Host or co-host community-focused workshops/presentations on ongoing network research including cure, PrEP, TasP, microbicides and vaccines among high risk populations at meetings/events.
Submit abstracts to present findings from HBCU and House Ball Projects to APHA, NAESM and USCA.
Publish and disseminate results of the HBCU Lincoln Project and the House Ball Project.
Oversee publication of quarterly BTG e-newsletter in collaboration with the HPTN, HVTN and MTN.
Utilize Community Partners to help promote the Legacy Project practices to address disparities, health and social issues in the context of HIV which can be applied in various populations and settings globally with high HIV prevalence or incidence.
Legacy Project Objective #4: Review topics across networks; identify areas where there are gaps and/or opportunities for improvement and work in collaboration with network leadership and DAIDS to address those issues.
Collaborate with DAIDS, WHRC, Community Partners and the NIH HIV/AIDS clinical trials networks to address transgender cultural competency and inclusion in network protocols.
Pursue funding opportunities in collaboration with Lincoln University, and/or other HBCUs, to build on the findings and recommendations of the HBCU Project to increase awareness and support for HIV/AIDS clinical research among HBCU faculty and students.
Pursue funding opportunities in collaboration with House Ball Project community partners to build on the findings and recommendations of the National House Ball Community Change Project to increase awareness and support for HIV/AIDS clinical research among house/ball communities nationally.
Legacy Project Objective #5: Build out BTG website content and updates in collaboration with the HPTN, HVTN and MTN.
Restructure BTG website content and update content in collaboration with the HPTN, HVTN and MTN.
Maintain and promote the BTG Google Group to facilitate communication among the former BTG B partners.
© HIV/AIDS Network Coordination