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Community Partners Activities

Community Partners (CP) is engaged in identifying and addressing challenges related to participation in clinical trials. These are some examples of CP activities.

Community Partners Objectives

1.  Develop a community research priorities agenda. Strategies and activities to support this objective:

  • Review network efforts on the research priorities and identify priority gaps in research.

  • Develop questions to make the current priorities more detailed and specific.

2.  Utilize the Community Training Working Group to share existing CAB training materials; identify and integrate material and develop new or standardized cross-network CAB training materials when there are unmet training needs or a strong rationale for standardized modules. Strategies and activities to support this objective:

  • Develop a strategy to disseminate and promote new or standardized cross-network Community Partners training materials to Networks, Sites, and other community groups.

  • Develop a strategy to measure dissemination and promotion across networks.

  • After completion of the training materials, the standardization process and impact of the initial cross-network CAB training module will be assessed and presented to CP. If there is consensus on the value added the working group will select additional priority topics to address using the same process.

  • In partnership with DAIDS, develop eLearning modules based on the CP Training Materials.

  • Gather and catalogue available training resources on the HANC website

3.  CP will consider evaluation of Community Partners efforts and activities and develop and implement mechanisms to evaluate our progress and impact and serve as an advisory group to the EMTF. Strategies and activities to support this objective:

  • Develop a continuous quality improvement process for CP.

  • Identify objective metrics and mechanisms for evaluating the impact of CP activities.

  • Revise the Site Staff and Site CAB Survey.

  • Disseminate survey results and use findings to help guide future CP activities.

4.  Review site-level CAB funding and support in the current grant period to identify areas where funding and support mechanisms are working well and areas where there are problems or opportunities for improvement. Strategies and activities to support this objective:

  • Research the current site/CAB funding structure to better understand how the system works.

  • Partner with the network leadership to assess how site funding mechanisms have impacted community involvement at the network, CTU, and CRS levels.

  • Based on analysis of that information identify expectations for CAB support and funding that can tie into cross-network community evaluation and make recommendations that are actionable to the Network Leaders and DAIDS.

5.  CP to provide input and disseminate information about network and site restructuring. Strategies and activities to support this objective:

  • Provide recommendations for community reviewers to DAIDS for Leadership Groups and CTU FOAs.

  • Identify external domestic and international community groups and key stakeholders representing TB and HCV advocates in response to the broadened NIAID scientific agenda.

6.  Gather and collate information on community engagement mechanisms that are best practices across sites and share across networks and with DAIDS to address these issues. Strategies and activities to support this objective:

  • Identify opportunities for improvement and work in collaboration with DAIDS to provide guidance in developing and updating DAIDS informed consent assessment documents and processes for supported and/or sponsored protocols.

  • Collect, review and analyze information related to management of pregnancy and contraception on study to identify and generate related cross-network tools and guidelines/recommendations.

  • Provide cross-network input to DAIDS to support the development of ethical guidelines and considerations for trial designs.

  • Identify opportunities for improvement and generate recommendations regarding placebo or standard of care arms in prevention trials.

7.  Utilize CP members to provide information exchange to enhance collaboration and identify further engagement topics/issues. Strategies and activities to support this objective:  

  • Identify potential contacts for information exchange and collaboration, including the Adolescent Trials Network.

  • Increase awareness of CP training materials

  • Promote CP training materials at full network group meetings

  • Gather and organize existing network CAB newsletters to post on the HANC Website.

 

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