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Community Coordination Objectives for 2017
Community Partners Objective #1: Enable involvement in the development and sharing of research priorities, and harmonization between community and investigator research priorities. CP Research Priorities Working Group
    • Strategies and activities to support this objective:
      • Continue to promote the Transgender Inclusion Initiative, as outlined in the CP Memorandum, including working with DAIDS, the Networks and other groups to encourage adoption and implementation of the recommendations
      • Select a chair or co-chairs for the working group
      • In partnership with DAIDS, develop and distribute  Standard of Care memo for community members
      • In partnership with CP Ethics WG, review and address understanding of Informed Consent among CABs
      • Continue to review and make recommendations on co-endorsed protocols to ensure community input
      • Review network efforts on the research priorities and identify priority gaps in research

      Community Partners Objective #2: Utilize the Community Training Working Group to share existing CAB training materials; identify and integrate material and develop new or standardized cross-network CAB training materials when there are unmet training needs or a strong rationale for standardized modules.

            • Strategies and activities to support this objective:
              • Query CABs/community members to determine the usefulness of developing storyboards based on current format focused on:
                    • Standard of care
                    • Stored specimens
                    • Placebo, blinding and randomization
                    • Genetics Training
       
      • Query site CABs to determine how translation of CP training materials are handled and by whom (ask OCSO how and if this is monitored at site level)
      • Develop a multi-level strategy to distribute and promote cross-network Community Partners and DAIDS resources and training materials to networks, sites and other community groups
      • Develop a multi-network CAB lessons learned/best practices document (protocol review, CAB meetings, etc.)
      • Query networks on whether and/or how CAB members are mentored to assume leadership roles and review protocols, and develop a  guidance document on how to mentor CAB members (sites annually invite CAB members serve as interns at sites)
      • Continue partnership with TB CABs in developing TB/HIV presentations, materials, best practices
      • Gather and catalogue available training resources on the HANC website and DAIDS Learning Portal(send out link to DAIDS Learning Portal)
      Community Partners Objective #3: CP will collaborate on the analysis and manuscript of the network-level community input survey conducted in 2013. 
      Strategies and activities to support this objective:
      § Reconstitute writing team(reach out to Cheryl, Melissa, Jontraye)
      § Analyze survey data evaluating the impact of network-level community input
      § Collaborate with colleagues from Concept Systems Inc. in this effort
      § Submit a manuscript for publication with the network-level community impact survey data
      Community Partners Objective #4: Utilize CP to provide input and recommendations to focus on meeting CP’s Strategic Plan objectives. Community Partners Executive Committee
      Strategies and activities to support this objective:
       
      §  Facilitate and enhance community representation and input at all levels in HIV/AIDS and related clinical research within the networks
      §  Support efficiency and effectiveness of local and network community advisory boards, and engagement of stakeholders
      §  Develop specific strategies to address stigma, including working with the TBTC CRAG community representatives
      §  Develop strategies to assist communities to prioritize research activities globally and locally
      §  Facilitate and enhance more effective collaboration with the Legacy Project and the WHRC with inclusion of CP membership to these groups
      §  Lead or collaborate on letters of support for international or domestic advocacy
      §  Address challenges to community engagement in clinical research
      §  Continue to monitor and provide support to CABs and communities impacted by site closures or changes in research or protocols
      §  Identify opportunities for improvement and work in collaboration with DAIDS and Network Leadership to ensure dissemination of research results (NIAID to share press releases with HANC to share with CP, communities and sites)
      §  Host or co-host community-focused workshops/presentations on ongoing network research and community engagement activities
      §  Host workshops/presentations at USCA 2017, 22nd International AIDS Conference 2018 Global Village and other meetings/events to engage communities and promote work and activities of Community Partners, including our collaboration efforts with TBTC CRAG
      §  Develop strategies to measure community engagement globally and locally from a community perspective
      §  Post CP information in CAB and network newsletters and network public websites (follow-up on a quarterly basis)
       
      Community Partners Objective #5: Review topics across networks; identify areas where there are problems or opportunities for improvement and work in collaboration with the Network Leadership and DAIDS to address those issues.
      Community Partners & Community Ethics Working Group
      Strategies and activities to support this objective:
       
      §  Identify opportunities for improvement and work in collaboration with DAIDS to provide guidance to researchers, communities and stakeholders regarding the ethical considerations and challenges in research with individuals facing stigma, discrimination, legal sanctions and/or interpersonal violence, and social harms
      §  Provide cross-network input to DAIDS and Network Leadership to support the development of ethical guidelines and considerations into trial designs
      §  Collaborate with DAIDS and the CP Training WG on communicating and providing input regarding Incidental Findings and Stored Specimens samples for community and site staff
      §  Collaborate with CP Training WG on developing new strategies to discuss randomized trials in light of PrEP Identify opportunities for improvement and generate recommendations regarding standard of care
       
      Community Partners Objective #6: Utilize CP members to provide information exchange to enhance collaboration and identify further engagement topics/issues. Community Partners
      Strategies and activities to support this objective:
       
      §  Identify contact for engagement with ATN
      §  Provide guidance regarding compensation for injuries during research and role of IRBs
  •  Promote CP training materials at full network group meetings and other trainings as requested
  • Gather and organize existing network CAB newsletters to post on the HANC Website  
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