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Community Coordination Objectives for 2018
Community Partners Objective #1: Enable involvement in the development and sharing of research priorities, and harmonization between community and investigator research priorities. CP Research Priorities Working Group
Strategies and activities to support this objective:
  • Work directly with DAIDS Cross-Network Transgender working group to promote the Transgender Inclusion Initiative, as outlined in the CP Memorandum, including working with DAIDS, the Networks and other groups to encourage adoption and implementation of the recommendations internationally.
  • Continue to review and make recommendations on co-endorsed protocols to ensure community input
  • Work with the CP Training WG on updating the Recommendations Document
  • Review network efforts on the research priorities and identify priority gaps in research prior to and after the Leadership RFA and prioritize
    • Continue to support TB/HIV co-infection
    • Explore mechanisms around identifying protocol saturation in communities and make recommendations
    • Pediatric and Adolescents
    • Translation of basic sciences to clinical sciences
      • Microbiome, gut, correlates of efficacy, etc
      • Post-exposure Prophylaxis
 
Community Partners Objective #2: Utilize the Community Training Working Group to identify  unmet training needs that are common across the networks and determine how they can best be addressed.
Strategies and activities to support this objective:
  • Examine the Recommendations Document to determine if and how it needs to be updated
    • Query sites as to how the document is currently being utilized and what changes they would like to see in a revised document
    • Determine the best mechanism to collect this information and the key individuals to work with to collect this information
    • Develop strategies and talking points to introduce Community Partners and DAIDS training materials and resources. Explore the cost and mechanism for the translation of training resources and materials
    • Develop FAQ sheets on how to access resources and training materials
    • Identify and engage staff with direct CAB related responsibilities
  • Develop a multi-network CAB lessons learned/best practices document (protocol review, CAB orientations, CAB meetings, etc.)
  • Continue partnership with TB CABs in developing TB/HIV presentations, materials, best practices
  • Survey training needs of CABs around the following topics:
    • Partner with other groups addressing sexual violence against girls and women  and HIV infection
    • Vaginal microbiome
    • CURE
    • Monoclonal antibodies
    • inflammation
    • family based involvement in studies
 
Community Partners Objective #3: CP will collaborate on the analysis and manuscript of the network-level community input survey conducted in 2013. (Stephaun, Danielle, Sherri, Charles)
Strategies and activities to support this objective:
§ Analyze survey data evaluating the impact of network-level community input
§ Collaborate with colleagues from Concept Systems Inc. in this effort
§ Submit a manuscript for publication with the network-level community impact survey data
 
Community Partners Objective #4: Utilize CP to provide input and recommendations to focus on meeting CP’s Strategic Plan objectives. Community Partners Executive Committee
Strategies and activities to support this objective:
 
§  Facilitate and enhance community representation and input at all levels in HIV/AIDS and related clinical research within the networks
§  Support efficiency and effectiveness of local and network community advisory boards, and engagement of stakeholders
§  In partnership with site staff and CABs, query for the threshold for site leader participation at CAB meetings
§  Develop specific strategies to address stigma, including working with the TBTC CRAG community representatives
§  Develop strategies to assist communities to prioritize research activities globally and locally
§  Facilitate and enhance more effective collaboration with the Legacy Project and the WHRC with inclusion of CP membership to these groups
§  Lead or collaborate on letters of support for international or domestic advocacy
§  Address challenges to community engagement in clinical research
§  Continue to monitor and provide support to CABs and communities impacted by site closures or changes in research or protocols
§  Identify opportunities for improvement and work in collaboration with DAIDS and Network Leadership to ensure dissemination of research results (NIAID to share press releases with HANC to share with CP, communities and sites)
§  Host or co-host community-focused workshops/presentations on ongoing network research and community engagement activities
§  Host workshops/presentations at USCA 2018, 22nd International AIDS Conference 2018 Global Village, Union Conference Community Space in Amsterdam in 2018 and other meetings/events to engage communities and promote work and activities of Community Partners, including our collaboration efforts with TBTC CRAG
§  Develop strategies to measure community engagement globally and locally from a community perspective
§  Post CP information in CAB and network newsletters and network public websites (follow-up on a quarterly basis)
§  Link to CRAG Site and Resources on CP Site
§  Host webinar on PEP
 
Community Partners Objective #5: Review topics across networks; identify areas where there are problems or opportunities for improvement and work in collaboration with the Network Leadership and DAIDS to address those issues.
Community Partners & Community Ethics Working Group
Strategies and activities to support this objective:
 
§  Identify opportunities for improvement and work in collaboration with DAIDS to provide guidance to researchers, communities and stakeholders regarding the ethical considerations and challenges in research with individuals facing stigma, discrimination, legal sanctions and/or interpersonal violence, and social harms
§  Ensure the inclusion of ethical guidelines and considerations into trial designs
§  Review protocols for stigmatizing language and make language change recommendations
§  Host webinar around use of new research language (open label, superiority/inferiority) to educate communities
 
Community Partners Objective #6: Utilize CP members to provide information exchange to enhance collaboration and identify further engagement topics/issues. Community Partners
Strategies and activities to support this objective:
 
§  Identify contact for engagement with ATN
§  Promote CP training materials at full network group meetings and other trainings as requested
§  Gather and organize existing network CAB newsletters to post on the HANC Website
 
Community Partners Objective #7: Reconstitute the Community Site-level Funding Working Group to review site-level CAB funding and support issues in to identify areas where funding and support mechanisms are working well and areas where there are problems or opportunities for improvement and make recommendations to the Office of Clinical Site Oversight (OCSO).
 
Strategies and activities to support this objective:
 
§  Solicit and Identify members to participate in working group
§  Identify priorities for working group
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